Yesterday's pictures graciously taken by a dear friend Mrs. Hatch...
Underneath the breathing tube, picc line, wires, bruises, and scars is our precious pumpkin.
The mouse is one of his favorites. He loves to feel his blanket when he's not in "sock prison." The socks are to prevent him from pulling on his breathing tube, another favorite past time of his.
My what big eyes you have! Endurance is fascinated with cameras!
These past couple of days have been quite stressful for us. Endurance's feeds have been turned on, turned up, and turned up even more. Now they are turned off again. I asked if he could be given a non-FDA approved, yet being used in Europe with great results, something called Omega-van. It would greatly improve his liver. And prevent damage. Unfortunately he is not a candidate since his liver is not as bad as it's supposed to be.
With more greater concern, I speak rather sadly on the subject of his care. Due to our "outrageous" decision to re-intubate him, meaning taking the next step to keep him alive with a breathing tube, I was told today by Endurance's nurse that "to be honest, a lot of nurses and RT's will not take care of Endurance since they believe Mike and I are being inhumane!" What? Well, that crushed me more than I ever thought I could be. Of course, now that I know that "they" have weeded themselves out, then we know that the ones taking care of him don't mind, yet I am still entangled by what she said.
I have had other comments about our decision for Endurance's life. One nurse told me that she would never in-tubate her children. Another has stated, "We're going farther than most parents." One of our heart failure doctors asked in an interesting tone, "is he really comfortable?" and after saying that he left Endurance's room.
Are we that wacko? No! We're requesting that they give food and air to our little one. Mike told me that most staff here would probably believe that Terry Schiavo's death was humane. This is crazy! This is real.
Please keep us in your prayers as we stand in our faith with Endurance. God is and will be our strength!