Yesterday's pictures graciously taken by a dear friend Mrs. Hatch...
Underneath the breathing tube, picc line, wires, bruises, and scars is our precious pumpkin.
The mouse is one of his favorites. He loves to feel his blanket when he's not in "sock prison." The socks are to prevent him from pulling on his breathing tube, another favorite past time of his.
Enjoying this precious moment!
My what big eyes you have! Endurance is fascinated with cameras!
Prayer....
These past couple of days have been quite stressful for us. Endurance's feeds have been turned on, turned up, and turned up even more. Now they are turned off again. I asked if he could be given a non-FDA approved, yet being used in Europe with great results, something called Omega-van. It would greatly improve his liver. And prevent damage. Unfortunately he is not a candidate since his liver is not as bad as it's supposed to be.
With more greater concern, I speak rather sadly on the subject of his care. Due to our "outrageous" decision to re-intubate him, meaning taking the next step to keep him alive with a breathing tube, I was told today by Endurance's nurse that "to be honest, a lot of nurses and RT's will not take care of Endurance since they believe Mike and I are being inhumane!" What? Well, that crushed me more than I ever thought I could be. Of course, now that I know that "they" have weeded themselves out, then we know that the ones taking care of him don't mind, yet I am still entangled by what she said.
I have had other comments about our decision for Endurance's life. One nurse told me that she would never in-tubate her children. Another has stated, "We're going farther than most parents." One of our heart failure doctors asked in an interesting tone, "is he really comfortable?" and after saying that he left Endurance's room.
Are we that wacko? No! We're requesting that they give food and air to our little one. Mike told me that most staff here would probably believe that Terry Schiavo's death was humane. This is crazy! This is real.
Please keep us in your prayers as we stand in our faith with Endurance. God is and will be our strength!
(((hugs&prayers)))
ReplyDeleteStand fast therefore in the liberty wherewith Christ hath made us free, and be not entangled again with the yoke of bondage. Gal. 5:1
ReplyDeleteFor he that soweth to his flesh shall of the flesh reap corruption; but he that soweth to the Spirit shall of the Spirit reap life everlasting. And let us not be weary in well doing: for in due season we shall reap, if we faint not. Gal. 6:8-9
Your family is continually in our prayers. May we, through prayer, encourage you in this battle.
You are right, dear one. This IS crazy! This is where our society is today and you are standing in direct opposition to it. Of course, they will cast aspersions on you! You are right in the thick of this battle.
ReplyDeleteMay we hold your arms up as they weary in this battle in order that you might stand strong! Let the Lord's light SHINE in this darkness. Stand fast. Stand strong. Stand humbly. Yet stand in God's strength and truth.
Life is the Lord's to give and the Lord's to take. In His time and good pleasure. Blessed be the name of the Lord!
Holding your arms up in the heat of the battle,
The Seargeant Family
Dear Holston Family,
ReplyDeleteI am praying for Endurance very much. We hope that if it is God's will that He will heal Endurance. We are all praying for Endurance.
Love,
Jackson Seargeant
Dearest Holston Family,
ReplyDeleteWe are continually praying for all of you. You are all so dear to us and we thank the Lord for every day that He has graciously given to Endurance. May the Lord give you all peace during this trying time.
Love in Christ our Lord,
- Megan for the Petersen family
Thanks so much for posting pictures! He is sooo cute! :) I love going and visiting him. It kinda brightens my day. And don't let the doctors get you down. If I were in your shoes I'd be doing the same thing. Say hi to Endurance for me! :)
ReplyDelete~Stephanie
Sweet, sweet little man - what a treasure he is to behold!
ReplyDeleteAmmanda Wanless
God bless you and your strength for Endurance.
ReplyDeleteMay the Lord guide you in this struggle, regardless of the outcome, which He set in motion from the beginning but is not yet known to us.
Be thankful for the honesty of others, even if they disagree.
I'm praying for a miracle as well- but find comfort that Endurance will be with Jesus if a miracle is not in His plan
Your choices are between you and the Lord.
May you find Peace regardless of the outcome.
-With love
What an amazing battle you fight to protect the life of your son. By God's grace and to his glory may the good Lord continue to give you strength and endurance to fight the good fight. May you be able to enjoy every precious moment to the fullest has a family. God protect you from the enemy and his lies. Be encouraged you do not fight alone but with the won who has victory over death- Jesus Christ. Amen and many blessings. In His service, Le'Andra
ReplyDeleteI so wish I could meet this handsome little man.
ReplyDeletePlease! ~ give him a kiss from me.
With a mothers heart in prayer for you and your home.
Mrs. Frees (Hannah's mom)